Chapter 68 Chapter 68 Visit
At the end of September, the classmates group that had been silent for a long time suddenly became active again, and messages were pushed to the top of the mobile phone list one after another. Xu Sui had just finished an outdoor interview at that time.
The interview took place in a rather old settlement in Haicheng, and the interviewee was a single mother raising her child alone.
The child is a butterfly baby.
I had a prenatal checkup when I was pregnant, and all the results were positive. Finally, a butterfly baby was born with a genetic mutation.
The family originally had some savings, but the money needed to take care of a butterfly baby is huge, and daily wound care is a huge expense.
Sterile dressings, wound repair medications, skin care and moisturizing, as well as auxiliary medical and rehabilitation support.
Moreover, wound care requires long-term and frequent changes, and patience is essential. But the most terrifying thing is a future without hope. Hope without end is the greatest despair in the world.
Families were unable to afford the high costs and eventually fell apart.
The mother left with her young child and traveled to every corner of Haicheng, seeking medical treatment, help, and survival.
This is a marathon without a finish line, and maternal love is the inexhaustible driving force for children to run hard.
Behind every well-cared-for butterfly baby is a mother who refuses to give up hope.
Even though I don't know how long you can exist in this world, I am willing to use all the love in my life to accompany you through this short life.
After all, we are only destined to be together in this short life.
**
After finishing the interview and getting in the car, Xu Sui didn't say anything. He stared out the window in a daze. The car drove into the core area of Haicheng, where there was a lot of traffic. Luxury cars worth millions or tens of millions were everywhere.
Some people drink wine from golden cups worth ten thousand, while others hesitate in this world.
Xu Sui suddenly felt uncomfortable in her eyes and a dull pain in her heart. She opened her mobile phone and saw the message of 99+ in the WeChat group, but her fingertips did not stop. She clicked on her bank card and started checking the balance.
Over the past three or four years, I have saved about 200,000 yuan. In two months, I will be able to pay back all the money I owe to my mentor, and then I can use the money for other purposes.
She rubbed her temples, exited the interface, and opened WeChat.
Only then did he notice that the WeChat group of 99+ was a group of high school classmates. Seeing this, Xu Sui was slightly stunned. This group had not had any new messages since it became active during the Dragon Boat Festival holiday.
Xu Sui suddenly remembered that National Day was just a few days away, and he had some vague guesses in his mind. He clicked on it and found that it was indeed the news about organizing a class reunion.
Xu Sui slid his fingertips upwards, feeling that this proposal probably could not be implemented.
There are too many things that are beyond one’s control in the adult world. Most people do not stay in Chongqing, but choose to go to the coastal areas to make a living.
Some felt that traveling back and forth was too troublesome, while others could not leave during the National Day due to professional issues and work arrangements, so they decided to do it during the Chinese New Year.
I have to come back for the Chinese New Year.
After all, this year marks the tenth anniversary of the disbandment of Class 1301.
Some people in the group asked about their whereabouts. Among them, the most popular student in the class was always asked. Jiang Song said that he would take up his post in Haicheng in October.
Some people were surprised. After all, the capital was such a good place, who wouldn't want to squeeze in? But Jiang Song just retreated from there.
Xu Sui also saw someone asking about Song Shiyang, and the messages tagged him formed a long queue. After all, this person was a well-known figure in Class 1 and City 1, so he attracted more attention.
Xu Sui saw Song Shiyang reply in the group, saying that he was waiting for work in Haicheng.
As soon as these words were spoken, the group fell silent, and no one responded for a long time. When Xu Sui saw this, he paused. This person's favorite thing now was to talk nonsense.
But he was not wrong. He would not officially join the drug research institute in Haicheng until October, and he was indeed on standby at home now.
In the end, it was Jiang Changjia who broke the silence.
Jiang Changjia: [Don't listen to his nonsense. He's been sent back to China from the International Research Institute. He hasn't received approval from higher-ups yet. Even if he's not working, he's still getting paid. He's still on standby. Song Shiyang, don't be so rude.]
Song Shiyang: [……]
Jiang Song: [I was totally intimidated. I thought you were going to follow in your father's footsteps.]
The group then became lively.
That night, Xu Sui went home and told Song Shiyang about today's interview and asked him when this special medicine could be developed and put on the market.
Song Shiyang stroked his fingertips, his eyes deep, and stood up. He walked to the balcony and looked out at the glittering and prosperous Haicheng. Xu Sui also stood up and walked to his side. After a while, she heard Song Shiyang say in a calm voice: "A year and a half, at least a year and a half."
Drugs for hereditary epidermolysis bullosa have been put into use internationally, and domestic research in this area is gradually following suit. Medical schools of major universities, professional doctors in the three major hospitals, and personnel from major scientific research institutes are all doing their utmost.
But this is a long battle.
Xu Sui did not return to Chongqing during the National Day holiday. He went to various butterfly baby families in Haicheng to understand the situation. Only with deep perception can high-quality press releases and interview drafts be written. This was the advice Song Shiyang gave when the two talked that day.
"You can go around and see things from a different perspective during the National Day holiday. I think you will probably have a different perception." Song Shiyang took the medical book from her desk, flipped through it, and suggested.
"Okay." Xu Sui put down the pen in his hand and rubbed his eyebrows.
"It's getting late, go to bed early." He stood up, rubbed Xu Sui's head, and walked away.
So the two of them embarked on a journey of visiting, not as reporters and researchers, but as ordinary people.
This way, we can communicate with them more sincerely and understand them better, and the families of Butterfly Baby will be more willing to express their feelings.
Song Shiyang followed behind her. Before each trip, the two of them would fill the car with supplies for Butterfly Baby. They would visit several houses a day, and after the conversation, they would give them the best dressings and care medicines.
Whenever he sees a child who is poorly cared for, Song Shiyang will squat down and change the child's dressing himself, and explain the main techniques and things that need attention to the parents.
Xu Sui stood beside him, handing him something, lowering his eyes to look at the man in front of him who was changing the child's dressing while gently explaining basic nursing knowledge to the parents. Pus and blood oozed from the festering wound, accidentally staining his sleeves and the back of his hand, but he did not show any impatience or disgust.
He would only frown slightly when he saw a wound that was too severe, and his hands would move more gently.
If the condition worsens because the family cannot afford medicine due to financial reasons, he will add the parents' contact information and the future medicine expenses will be paid to him.
They thanked them repeatedly and escorted Xu Sui and Song Shiyang out of the dilapidated building.
As they walked on the cement road, Xu Sui suddenly turned his head and asked, "Can you... afford it? If it's not enough, I still have some."
She originally wanted to donate it to the Haicheng Butterfly Baby Contact Center, but it would be fine to spend it directly on them.
"What are you referring to? Money?" Song Shiyang's gaze fell vaguely on somewhere in the distance, and he turned his head to look at Xu Sui when he heard that.
"Yeah." Xu Sui nodded.
"Don't worry about that. I have beneficiaries in every corner of the country. With these few more people, they won't be so poor that they can't have food to eat. I said I earn a million a year." He smiled, pinched Xu Sui's face, and tried to force a smile.
Hearing him say this, Xu Sui was even more shocked. He looked at him in disbelief and asked in a muffled voice: "When did you start?"
"Started? It took a long time, probably in the third year of junior high school." Song Shiyang thought for a while and answered.
Xu Sui suddenly remembered something, and something in his heart was about to come out. He asked in a low voice: "Is this why you studied biology?"
Establish a mind for the world and a mission for the people.
"Well, I was young then, and I would think about why we are human every day."
"What's your answer?" Xu Sui took over his words. At this moment, the sun was about to set, and only a few afterglow fell on the earth, leaving a dim yellow color.
"As a human being, you should serve the country and the people, and establish your mind and destiny." He curved his eyes and said softly.
It doesn’t matter how big or small your achievements are, all I want is a pure heart.
It was the same answer as seven years ago. At that time, the wind blew, bringing up a cloud of dark yellow fallen leaves. The weather had begun to get cold, and Xu Sui sneezed.
"Are you cold?" His tone suddenly changed and he held her hand tightly.
"It's good that you knew about Butterfly Baby in the third year of junior high school?" Xu Sui asked curiously.
"Yeah, I found out by accident." Song Shiyang reached out and hugged Xu Sui into his arms, giving her warmth.
The Song couple were also fond of charity. When they were working in Chongqing, they often donated clothes, books and other things to orphanages.
In the year when he was about to enter the third year of junior high school, he was entrusted by his father to deliver things to the orphanage to ensure that the clothes and books were actually used by the children.
It was there that he saw the first butterfly baby he had ever seen in his life, a dying butterfly baby.
He thought he would never forget that scene in his life.
A very young child, the staff said he was three years old and was admitted during the summer vacation. His symptoms were already very serious at that time, and it was not easy for him to survive until now.
But Song Shiyang couldn't tell that he was three years old. He was too thin and too small. His whole body was just bones and his flesh was all rotten.
It was already too late when the orphanage discovered him. Normally, patients of this type can only maintain their vital signs through careful care over a long period of time, but he did not receive good care.
The child wanted to live, otherwise he would not have held on for so long. He had a high fever and was shouting for help and for his parents.
Song Shiyang wanted to save him, but he only had money, and even with the money he could not buy medicine. After a while, the man died.
The fourteen-year-old boy moved his fingertips, and finally closed his eyes helplessly, turned around and left the orphanage, walking on the misty mountain town road.
It was from that time that he first learned the term "hereditary epidermolysis bullosa patients".
This marked the beginning of more than ten years of public welfare activities and study.
Xu Sui lay in his arms, listening to him quietly. His voice was deep and steady as he recounted his experiences in his youth.
I couldn't help but hold his hand tightly.
The passing of a life is the most heartbreaking thing, let alone seeing it with your own eyes.
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